'I wrote a book about endometriosis' - this is what to do if you think you have symptoms - video Dailymotion

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Do you suspect something isn't right with your health? Endometriosis advocate and author, Jen Moore, joins health reporter Sarah McCann to discuss her new book, "Endometriosis," and provide essential information for those who think they may have the condition.  Jen shares her inspiration for writing the book, stemming from her own challenging diagnosis journey. She emphasizes the importance of accessing expert voices, highlighting the diverse specialists included in her book, from thoracic experts to radiologists worldwide.  Learn practical advice on approaching a GP if you suspect you have endometriosis. Jen suggests tracking symptoms, understanding effective routes, and having someone accompany you for support. Discover common symptoms of endometriosis and gain valuable insights into managing this complex condition.  #endometriosis #womenshealth #chronicpain #jenmuir

Transcript

00:00Hi, I'm health reporter Sarah McCann and today I am joined by Jen Muir endometriosis advocate

00:06and author Jen will be talking to us today about her new book endometriosis and also providing

00:12some information and insight on what to do if you suspect you may have endometriosis and I have my

00:18copy of the book right here I've been reading away at it and it'll probably pop up a little bit blurry

00:24and yeah it's such a really comprehensive guide I was really blown away by how much information is in

00:31here and it's it kind of as someone with endometriosis being able to see all the different

00:35layers everything that's included it really is like a one-stop shop if you suspect you have

00:41endo can I ask what was your inspiration behind writing the book it's something that I realized

00:48was needed probably when I was going through my own diagnosis struggle so it took me 22 years to get

00:55a diagnosis and I wasn't one of the people who had no idea what endometriosis was and it still took me

01:03two decades to get a diagnosis and even then you know trying to research things and look things up

01:09and understand what was going on in my body everything was so conflicting and the answer

01:16that I kept getting was we don't know we actually do know quite a lot about this disease now and how

01:22it manifests and how to treat it in the most effective ways for management and I think that

01:29was the biggest shock for me was when I was doing my own research and reading for my personal journey

01:36was how much there is it just hasn't been pulled together in one place in an accessible format what really

01:43struck me from reading it was the variety of experts that are included you know we have thoracic experts

01:48we have experts in the UK and you know radiologists and also worldwide experts what how important is

01:54having that access to those expert voices for patients or for people who suspect they have endo

02:01I mean it's hard to downplay the importance of it it can change your life it can save lives in some

02:08instances um it's such such a complicated disease and for so long we've just had this system where

02:16general gynees and this is not to downplay what the work they do which is phenomenal on other sort of

02:21diseases but this is such a complex disease and we're starting to realize now it needs its own

02:28team it needs people who devote their careers to this you know they're all quite active online but

02:34the most the vast majority of the time they're in the operating rooms where we desperately need them

02:39to be so they're not the ones that we quite often get to hear from in media articles or in you know

02:44conversations and in policy rooms so for me it was really really important to to highlight that knowledge

02:51and I I'm honestly blown away by their generosity of time and knowledge and experience and then how would

02:58you approach a GP if you have any advice regarding that yeah that's a big question um so yeah tracking

03:05your symptoms knowing kind of what the effective routes are whilst also understanding that it's very

03:12individualized so what one person had work for them might be very very different for you um but knowing

03:18that kind of broad sense of of what can work and what is available I think is really important and then having

03:24someone with you in the room as well I'd say those were my top three you shouldn't have to take somebody

03:30with you to to be believed or to get a different treatment um but from experience not just my own

03:37but from the hundreds thousands of people I speak to taking someone with them helps um for me personally I

03:45hate even more that it was my husband that was the biggest game changer for me having a man in the

03:49room did help um not always he has now witnessed quite a few instances of medical gaslighting that I think has

03:57deepened his understanding and helped our communication as well but it's I think when you

04:01you hear take someone with you you immediately think oh so they'll talk for me or you know and they don't

04:07have to if you want them to talk they can um you know there's all sorts of roles that having a person in the room can do

04:14and and that's probably one of the ones that I've found most effective in terms of things to look

04:20out for there are some really really common ones um the first one you know although we know that it's

04:26not a period condition is that heavy painful periods you know especially pain that impacts daily life

04:33is a really really common one

'I wrote a book about endometriosis' - this is what to do if you think you have symptoms

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