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  • 09/07/2025
Mum Kirstie’s sarcoma story of hope as she battles rare cancer

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00:00Sarcoma is known as the forgotten cancer. My journey with sarcoma started back in January
00:0623 when I was sitting on my sofa and crossed my legs over and found a lump. So I went to
00:13the GP and there was no real concern, it sort of felt a bit like a raised lymph node. Ten
00:19months later in October 23 I went to an appointment in the Ulster and was told I had sarcoma cancer.
00:27I was very lucky that Jill the sarcoma nurse was there that day and she sort of held my hand and
00:33still holds my hand through it all. Within three weeks I had that scan, I had a further MRI, the lump
00:39was behind my knee and I had surgery. So the biggest impact for me was my mobility. So I had a large
00:47portion of the back of my knee removed and it was right on the bend of my knee. So when I woke up
00:53from that surgery, the first surgery I had a full leg cast on so obviously I had to mobilise with
00:59crutches. But when I came out of hospital I was totally dependent on my husband, my mummy, my
01:06brother, their sisters, my children had to help me with everything. Following on that journey I then
01:12had to go and meet oncology and I had 30 sessions of radiotherapy. Nobody thinks cancer is going to
01:20come to their door until it does and then when it does it just creates a tornado effect on everything
01:27around you. I could not have went through that journey without the staff in the Ulster hospital.
01:33They were with me every step of the way. The support was incredible. We need to get the word out there
01:39that sarcoma is really treatable. We need to catch it early. I would really encourage people to check for
01:47lumps in their body. Always get it checked out. And that is my message. Never be afraid to come
01:53forward. Never be afraid to ask the question, could this be sarcoma?

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