Good Vibrations walk for Parkinson's Disease

Good Vibrations walk for Parkinson's Disease Newcastle April 2025.

Transcript

00:00Tell us why you're here today. Hi, I'm here because I have Parkinson's and I was

00:04diagnosed about four and a half years ago when I was 58 and at the moment I'm

00:08doing really well. It affects one side of me and the confidence is a little bit

00:13iffy but the medication works wonders so I'm grateful for that. And Skye, you're

00:20obviously here to support your mum. Absolutely. My sister that's from Tasmania

00:24actually found the cause. She'd love to be here too but yeah we would like to do

00:29anything we can to help raise awareness and funds to help find a cure for Parkinson's.

00:34Is this the first time you've done the walk? It is, yes.

00:37Robin why are you here today? I'm here to support my daughter Leanne. Yes and we've got

00:44Steffi's done. My granddaughter has put this on for the second year running which is a

00:48credit to her. Yes, all the support we can get. My name is Debbie and I've known Leanne

00:58probably for, oh my goodness, so long we can't remember, raise kids together. And yeah once she was

01:03diagnosed with Parkinson's disease we just all decided we needed to rally around her

01:08and get some knowledge out there about, we just need more research, more funding, more, more of

01:15everything unfortunately just like everybody. Do you feel if so there's been improvements made over the

01:19last 10 years? Well for Leanne it's been a recent diagnosis and I think she's been

01:25very lucky in that she's one of the few where the medication that's currently

01:30available is helping her quality of life. But we're all trying to navigate this

01:35NDIS system, that's what I think we all need a bit of a helping hand with that just

01:40to understand and getting through it. Finding resources that are out there but we just need, we need more knowledge as well. Sure.

01:46Sure.