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Emofilia, a Torino evento Sobi e Acep per il benessere psicofisico di bambini e ragazzi
adnkronos
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10/28/2024
(Adnkronos) - A Torino l’incontro ‘OLTRE LAB. Dalla consapevolezza all’empowerment’, organizzato da Sobi con il patrocinio di Acep - Associazione Coagulopatici Emofilici Piemontesi “Massimo Chesta” ODV.
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00:00
EMPOWERMENT
00:05
Giving support to the caregivers of children and young people with haemophilia,
00:09
offering tools and strategies to face the daily challenges related to the control of the pathology.
00:15
This is the theme of the meeting, in addition to LAB, from awareness to empowerment,
00:20
organized by SOBI with the sponsorship of ACEP,
00:23
Coagulopathic Haemophilic Piedmontese Association, Massimo Chesta, ODV, based in Turin.
00:29
The management of haemophilia for us doctors, but also and above all for the patients and their families,
00:34
has completely changed.
00:36
Now we no longer have to worry because we have the possibility to solve the problem
00:42
on the main problems of haemophilia, such as bleeding and bruises.
00:48
Now we have to focus more on the management of the haemophilia problem in an absolutely normal life.
00:56
It is possible today to effectively protect even situations of daily life,
01:03
I think in particular of sport, long walks.
01:07
As far as children are concerned, there is an attitude to mitigate fears
01:15
in getting closer to physical activity, especially in the school environment.
01:21
The key is adequate information,
01:25
an ability to take advantage of multidisciplinarity
01:31
and to give patients awareness of their limits and the protection possibilities we have today.
01:40
Experiences such as LAB are essential to give more and more awareness to the patient and to the family
01:48
about how the association and the patient themselves can collaborate in obtaining what we all want,
01:56
that is, a life free of disease.
01:59
Initiatives like these are very important because they support what is empowerment,
02:04
so the possibility for people with haemophilia to reach and above all to raise the bar
02:11
precisely for what is their ambition in the approach to pathology.
02:15
For us it is essential to be present and to promote the dynamics of collaboration in this sense.
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