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Children with chronic pain continue to face challenges and stigma in the classroom
ABC NEWS (Australia)
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9/28/2024
Whether it's missing school or life experiences that other children take for granted, children living with chronic pain face many challenges. And with stigma surrounding their experiences, experts worry their main hurdle is just being believed.
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00:00
Brianna loves spending time with her pets, but she's had to spend more time at home with
00:07
them than she'd have liked.
00:10
Earlier this year, she made the difficult decision to defer year 12 and the completion
00:15
of her studies.
00:16
It was quite depressing at first when they all moved out of the school, but I didn't.
00:25
Missing out has been a feature of Brianna's life ever since she was diagnosed with cystic
00:29
fibrosis shortly after birth.
00:32
Sometimes my disability puts me in hospital for a certain amount of time where I physically
00:36
cannot attend.
00:37
Historically, Brianna has spent at least two months a year in hospital because of her chronic
00:44
illness.
00:45
She has probably had between 10 and 40% attendance throughout her life.
00:50
Technology and help from a robot has helped Brianna stay in school as much as possible.
00:56
But even when she's there, there's still stigma to contend with.
00:59
They can be there at school, but the effort of being at school is taking all their concentration
01:05
and energy, and they don't have anything left to actually listen to the lessons.
01:09
Brianna contributes to a worrying statistic.
01:12
Chronic Pain Australia estimates one in five children live with chronic pain, and those
01:17
who do miss out on an average of 22% of their schooling and struggle to be taken seriously
01:22
by teachers and peers.
01:24
A lot of people in society think that chronic pain is just in a certain demographic.
01:28
The long-term effects of chronic pain in childhood are quite staggering.
01:33
Treating chronic pain is also a challenge.
01:36
Chronic Pain Australia says there are only six paediatric pain clinics across the country,
01:40
and it wants the federal government to fund more.
01:43
But the health minister isn't making any commitments, and says the government is already funding
01:47
a range of chronic pain initiatives for all ages.
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