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Dementia podcast Hold the Moment preview | The Senior | August 28 2024
The Senior
Follow
8/21/2024
Dementia Australia's podcast Hold The Moment features people living with the disease and reminds others they're not alone.
Hosted by Hamish Macdonald and Jim Rogers
Category
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Lifestyle
Transcript
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00:00
Welcome to Hold the Moment, a podcast from Dementia Australia about dealing with life after a diagnosis of dementia.
00:07
I'm Hamish Macdonald and I'm hosting this show with my friend Jim. G'day. G'day Hamish. How are you? Nice to see you. I'm very well. Thank you.
00:16
I'd had conversations with people or met people in my work and
00:21
I couldn't recollect the meeting when they could.
00:26
It was frustrating. The neurologist's office called, made an appointment and they did say to me,
00:32
unfortunately, we can see that you have young onset Alzheimer's.
00:37
It was almost an out-of-body experience. I just...
00:42
It's as though time stood still for a moment.
00:46
Dad was initially diagnosed with Parkinson's disease and then Lewy body dementia. This whole experience has
00:53
meant that I've had a more kind of intimate relationship with dad than what I would ever have expected because you sort of have
00:59
to get to know parts of your parent, you know, and their life in a way that you would never anticipate.
01:04
And even see them, you know, sobbing on a bed.
01:07
You know, I try to approach it by thinking through, you know,
01:11
how he might try and approach the situation if he was better able to make a decision.
01:14
That's a lovely thing, I think, for you to try and look at it through his eyes.
01:19
What would he want? I think an important thing is trying to reach in
01:24
to your loved ones with dementia by using tools, by reading them stories from their past.
01:29
Just enjoyable things you can do together. When you were first diagnosed, I know you spent a bit of time talking to your own brain.
01:36
Is that right? Yep. What did you, what conversations did you have with your brain?
01:41
Why did you do this? Why?
01:43
What have I done?
01:45
What has made you, you know, do this to me?
01:47
You should give me like a bit of a warning.
01:50
Yeah. But I'm very lucky because I was diagnosed early because that allowed me to do what I did to get my,
01:57
I call my active dying plan out of the way.
02:00
And now I'm on my active living plan and my adventure with dementia.
02:14
And I'm very lucky because I was diagnosed early because that allowed me to do what I did to get my active dying plan out of the way.
02:19
And now I'm on my active living plan and my adventure with dementia.
02:22
And I'm very lucky because I was diagnosed early because that allowed me to do what I did to get my active dying plan out of the way.
02:25
And I'm very lucky because I was diagnosed early because that allowed me to do what I did to get my active dying plan out of the way.
02:28
And I'm very lucky because I was diagnosed early because that allowed me to do what I did to get my active dying plan out of the way.
02:30
And I'm very lucky because I was diagnosed early because that allowed me to do what I did to get my active dying plan out of the way.
02:32
And I'm very lucky because I was diagnosed early because that allowed me to do what I did to get my active dying plan out of the way.
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