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Miracle baby Arley-James: from one pound survivor to first birthday celebrant
Lancaster Guardian
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20/02/2024
Miracle baby Arley-James Hughes was born four months early and only weighed one pound and was not expected to survive, today he's celebrating his first birthday.
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00:00
We're celebrating because Ali was born extremely premature at 22 weeks gestation.
00:05
He's turning one tomorrow on the 20th February and I think we should celebrate his little
00:12
life and all his accomplishments that he's had so far.
00:15
He's overcome endocarditis, various different infections in hospital due to long lines and
00:21
other things that are required just because he's in hospital really.
00:26
He had ROP in both eyes which is due to prematurity.
00:30
It's gone, resolved.
00:31
He had a bleed to the brain times two, both resolved.
00:34
He's had inguinal hernias in his groin which he's had to have an operation on and he's
00:40
done well on that as well.
00:42
Everything, he's had endocarditis which is a 75% mortality rate for an adult that's healthy.
00:48
When he was four weeks old he was told to make funeral arrangements.
00:52
I said absolutely not.
00:55
Thankfully a doctor came with a new wonder drug that they've never tried called microfungin,
00:59
asked if we could try it and I said well what have we got to lose really?
01:04
So he did that six weeks later after having four types of antibiotics throughout the day
01:08
for that amount of time.
01:10
He's overcome that.
01:12
Miracle, his consultants, doctors, nurses are all amazed that he's made it.
01:17
So yeah, little superstar right here.
01:19
He's here for a purpose definitely.
01:22
He's been up and down, they said when he first arrived it was going to be a rollercoaster
01:26
and my god has it been that.
01:28
But we've had great support, even now when we're at home we have the community nurses
01:32
that come out to him.
01:33
So we've constantly assurance, good family unit around us as well so always supported
01:39
in every aspect.
01:40
Great.
01:41
He likes food so we're going to take him in to get his photos done and have a meal afterwards
01:47
because as I say he likes to eat.
01:51
And that's it really.
01:53
Just like to feed him.
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