Olivia Volley starts her stem cell transplant
- 8 months ago
Olivia Volley, from Marshchapel, has Sideroblastic anemia with B-cell immunodeficiency, periodic fevers, and developmental delay (SIFD), an autosomal recessive syndromic disorder.
The syndrome is so rare that there are just 20 current cases worldwide, and she required a risky stem cell transplant, which has a 50/50 chance of being successful and if it works, Olivia will be able to lead a normal life.
After preparation surgery to remove her gall bladder in June, Olivia finally underwent the stem cell transplant on Thursday September 7, pressing the button on the transplant machinery herself to start the process.
And now, almost a week on, Jack and his wife Sally are playing a waiting game to see if the transplant has been successful, and this should become clear within two to four weeks.
The syndrome is so rare that there are just 20 current cases worldwide, and she required a risky stem cell transplant, which has a 50/50 chance of being successful and if it works, Olivia will be able to lead a normal life.
After preparation surgery to remove her gall bladder in June, Olivia finally underwent the stem cell transplant on Thursday September 7, pressing the button on the transplant machinery herself to start the process.
And now, almost a week on, Jack and his wife Sally are playing a waiting game to see if the transplant has been successful, and this should become clear within two to four weeks.