Baby with rare genetic condition waiting five months for operation on NHS
- last year
A one-year old baby with a rare genetic condition will have to wait more than five months for an operation on the NHS, her mum claims.
Rowanna Cookson, one, suffers from a rare genetic disorder called CTNNB1 which means her stomach doesn't allow her to eat normally and that her muscles are weak.
She is only one of 500 people in the world with the disorder and when she was seven months old, her mum Amy Cookson, 36, was told Rowanna would need an operation.
Rowanna Cookson, one, suffers from a rare genetic disorder called CTNNB1 which means her stomach doesn't allow her to eat normally and that her muscles are weak.
She is only one of 500 people in the world with the disorder and when she was seven months old, her mum Amy Cookson, 36, was told Rowanna would need an operation.