- 17/05/2025
Ça me regarde saison 11 Épisode 34
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ca me regarde saison 11 episode 34
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canada
ca me regarde saison 11 episode 34
ça #me #regarde #fr #vf #francais français fr vf
émission #ca #me #regard #emission qc #canada
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TVTranscription
00:00Brilliant TV Friends, presented with integrated described video.
00:03Today on the show, we celebrate Mother's Day,
00:07we discover the pregnancy clinic for women with disabilities
00:12and we present to you mothers of different children.
00:15This is Marisol St-Onge, welcome to Sam Regards.
00:19I'm so happy for this Mother's Day special.
00:33to highlight a specialized clinic,
00:36in fact the CHUM pregnancy clinic for people with disabilities
00:40and I have with me Dr. Claude-Émilie Jacob,
00:44obstetrician gynecologist and also Emmanuel Champagne,
00:48his patient, to tell us about it.
00:51Hello to both of you.
00:52Good morning.
00:53First of all, congratulations to the mother-to-be.
00:56Thank you, thank you.
00:57How many weeks ago were you born?
00:59There really aren't many left now.
01:01No.
01:02Me, two weeks.
01:03Wow.
01:04And you are also accompanied by an assistance dog.
01:07Yes.
01:08Was it a bit indiscreet to ask you what your medical condition is?
01:12Actually, Willow does a little bit of mobility,
01:18but also there for more post-traumatic stress disorders,
01:22So I have psychiatric assistance.
01:25Okay, so she accompanies you in your daily life and during your pregnancy.
01:29Yes, very good.
01:31Because yes, Dr. Jacob, this clinic was born from your project, from your idea.
01:38Yes, absolutely.
01:39Then it was born from a patient.
01:41A patient who contacted me, who had had a first pregnancy,
01:44who had had an experience that had been unpleasant,
01:47where she felt unaccepted in her parenthood project.
01:51She was a single parent.
01:53When she contacted me during her second pregnancy,
01:56from there our collaboration was born.
01:59Quietly, we saw the need to set up this clinic.
02:02That's how she quietly came into the world.
02:07Ah, cool.
02:08And because there are more specific needs
02:11for women with disabilities.
02:14Definitely, there are as many answers to that as there are
02:17that there are different disability situations.
02:20It really requires appropriate support,
02:23which are truly specific to each patient, to each family.
02:27In fact, the needs will never be the same.
02:29The conditions are not the same.
02:31That's why we set up this clinic,
02:34which is the very first clinic that takes care of everything from A to Z
02:39patients from preconception until returning home
02:42to support them as best as possible.
02:44Is this all the disabilities you track?
02:47Yes, we are completely inclusive, whether it be sensory, mobility,
02:51intellectual disability, development.
02:54We accept any person or family who wishes to become a parent
03:01to accompany them in this.
03:03And you, Emmanuelle, I think this isn't your first pregnancy.
03:07But were you followed up by the clinic both times?
03:12I gave birth to my little girl, in fact, two years and a few months ago.
03:20And there, I'm going to give birth soon, indeed.
03:24From a second. And since the beginning, have you been with the Pregnancy with Disabilities clinic?
03:29In fact, for my daughter, I had started follow-up in another hospital.
03:35Then finally, the whole team was not necessarily comfortable continuing the follow-up.
03:42because it required more specialized services.
03:45And it was thanks to this that I was lucky enough to be referred to the Oshum Pregnancy and Disability Clinic.
03:51And precisely, what adaptations were useful to you?
03:56But in fact, there is a whole schedule that is made with the clinic
04:01which allows us to have services that are specific to our needs.
04:06Then also, there is really good listening, a lot of kindness, empathy
04:10to identify what our needs are.
04:13For example, pain is an issue that is very important to me.
04:18So, Dr. Jacob had said that there was no way I was going to suffer throughout the pregnancy.
04:25Then she referred me to the Oshum Pain Clinic where I also received exceptional services.
04:33Then it was also about determining the plan for my delivery.
04:39So, I had an MRI to see how my back was doing.
04:43Then, several specialists were consulted, including a urogenecologist,
04:48to be able to, basically, establish the plan that is safest for my baby and then for me.
04:56So they made some nice adjustments afterwards to make the plan fit me.
05:04Basically, I had learned that I would have a cesarean section under general anesthesia.
05:09It was definitely scary, but the way it turned out was amazing.
05:15I was able to do whatever I wanted skin to skin with my little baby.
05:20They even filmed it.
05:22It was very important to me because I told myself that I don't want to miss this.
05:27These precious moments, with beautiful memories to boot.
05:31Yes, exactly.
05:32So, that's really the type of support you do,
05:36to make it all very... so that we feel comfortable, so that we feel safe too.
05:41Yes.
05:42I think there is also a patient-partner committee to include everyone even more in the file.
05:50Indeed, when I started working on this clinic,
05:55I quickly set up this committee which includes patient-partners, including Emmanuel.
06:01Who is part of it.
06:02Who is part of it now.
06:04Patients who wanted to share their experience.
06:07We had occupational therapists, social services, physiotherapists,
06:11community people, advocacy organizations.
06:15So, it was really very, very, very varied in terms of expertise.
06:19The goal was really to unpack what the difficulties are and how we can smooth them out.
06:24What is difficult about these parents when they come forward?
06:29and how we can best support them.
06:32To get to the point, yes, adapt as much as possible.
06:37to make the experience as positive and safe as possible.
06:42Yes.
06:43And it works.
06:44Yes.
06:45It's a very beautiful project, a very beautiful clinic, in fact, which has been in operation for how many years?
06:50We started in 2020.
06:52It really took the day, I think, 2022-2023, where the calendar was really created,
07:00which is a schedule that all patients will go through with all stakeholders
07:05so that at about 32 weeks of pregnancy, we sit down and make a multidisciplinary plan.
07:10So we sit down, sometimes there were up to 17 people.
07:14to really bring everyone together, talk together,
07:17to be able to present a plan that is unanimous for patients.
07:20Also avoid differences of opinion, avoid the patient having at least a feeling of participating.
07:30I would say it's been about two or three years now that she's really been on her feet.
07:35Good, wonderful. Thank you very much.
07:38And all the happiness for the next little baby to come.
07:42Thank you, thank you.
07:43And at the same time, just before we leave, perhaps indicate to the women
07:47who would also like to be followed by the clinic, how can they contact you?
07:52In fact, on the CHUM website, we have a dedicated page with an email address.
07:58They don't need a reference, they can just write to the email address
08:01their need, whether to be assessed in preconception, in anticipation of a pregnancy,
08:05to know what it would look like, what my risks are, how I would be treated,
08:09or if they are pregnant, then automatically, they will be covered 100% by the clinic.
08:15Thank you both very much.
08:17Thank you.
08:18THANKS.
08:19And now we are watching a report that takes us into life, in fact, a day in the life
08:24of Eugenie and her son Mason.
08:29Okay, Mason, we're here, let's go down.
08:32We're going to go to the chair.
08:35OK.
08:37We arrive at the hospital.
08:46We're going to put the premedication in the yogurt for Mason.
08:52Every Wednesday, before settling in.
08:58My name is Eugénie Jalbert, I am Mason's mother.
09:01Now we're going to take the pressure, Mason, and then after that we're going to install the needle.
09:06Mason has a very rare disease.
09:09Hunter syndrome is a disease caused by a deficiency of an enzyme.
09:16If we lack this enzyme, we will have an overload of this chemical in many cells in the body.
09:26and it will affect almost every system in the body.
09:31The lungs, the heart, the skeleton.
09:35For the brain, it will cause regression with development.
09:39And that is one of the big challenges for this disease.
09:43There is no treatment to date to reduce the overload in the brain.
09:51My name is Dr. John Mitchell, I am a pediatric oncologist and geneticist,
09:56and I'm Mason's doctor.
09:59This is the medication that I carry a complete line with, that I will come and plug in here.
10:04Mason is good, he's used to it.
10:07We're here at the hospital with you, Mason is in treatment.
10:11What does your involvement look like?
10:13Every Wednesday, since Mason, the medication is a weekly lifelong medication.
10:20And that's just for the clinical protocol.
10:22So sometimes we have other appointments.
10:24We have lung tests, heart tests, audio tests, URL tests.
10:28We make additions to these Wednesdays every week.
10:32For four years.
10:34But how do we navigate through all of this, emotionally?
10:38It's true that when you learn that you have a sick child, there is so much grieving to do.
10:43There is such a big onboarding process.
10:46And I don't like to say acceptance, because I think that ultimately, we never accept having a sick child.
10:50But I think it's about welcoming that.
10:53No one who told me much there.
10:57I read a lot, I study.
10:59I feed on what turns me on.
11:01You know you have your child who is going to die.
11:04And to say, I decide to be in the present moment.
11:09That's a lot of strength.
11:12I don't know how to give to everyone.
11:16I take a few moments, probably during the year,
11:19to tell me that it's something.
11:22We allow ourselves to cry.
11:24My partner and I are going to look at photos and videos of Mason.
11:27When he was talking, or when he was no longer turned on, let's put it like that.
11:31It's sure to have come to us.
11:37There is no point in living in a future that is not written.
11:41For me, that's how I see it.
11:43Yes, it takes strength, but I find it much more painful to be on the other side.
11:46To be on the side of victimization, then on the side of, yes, but there, he will die.
11:50What helps me be happier is being here today,
11:53then reminding myself that he doesn't have all the opportunities that I have every day of my life,
11:57to live my dreams.
11:59Good morning.
12:00Hello, Doctor Mitchell.
12:01Is everything okay today?
12:02It's going very well.
12:03Yes.
12:04Mason is in a study.
12:06And this study is really about trying to combat the regression of development.
12:13There is treatment for the other symptoms.
12:17We have an enzyme that we can give.
12:20This means that we hope, with new treatments,
12:24than for Mason or other children like Mason,
12:27developmental regression can be prevented.
12:30For Mason, he's pretty much on a plateau.
12:34There has been no regression to date.
12:43In fact, you created your business based on Mason's needs.
12:49Absolutely.
12:50Today, I am a coachalistic therapist.
12:54But before that, I had two other businesses in the arts field.
12:57When I found out that Mason was sick, I decided to end that life.
13:01because it couldn't support my reality.
13:04But yes, today I have created a job that allows me to work my own schedule,
13:07which allows me to have fun too.
13:10Life is so precious.
13:12Everything can change overnight.
13:14Every day, I make sure to take action towards a dream, a goal that I have.
13:19Life is too short.
13:20I don't know when Mason will leave.
13:22These are children who die young.
13:24This, for me, is my awakening, this is my very anchor.
13:29I often say a curse turned into a blessing.
13:36Eugénie Jalbert published the book “Being Differently”
13:39to equip women who are going through situations similar to hers.
13:44It's interesting to know that 50% of the profits go to research at the Montreal Children's Hospital.
13:50After the break, we meet the director of a film inspired by her son, Doigté.
13:57Subtitling Canadian Broadcasting Corporation
14:27Yum! So good!
14:29It seems like two films touched each other, but here I just felt like dancing.
14:33Make it dance!
14:34Atypical Reviews. New episode, tonight at 7 p.m., on Ami-Télé.
14:40I'm ready.
14:41Tonight, at the Ami-Télé meeting.
14:43How do you make polo?
14:47Does being an amputee change your sex life?
14:50What is this question?
14:52Make yourself comfortable.
14:54Hi! I would love that!
14:55It's not stressful at all.
14:56To see four episodes…
14:58I feel like this is going to be crunchy.
14:59Oh well, that surely!
15:00…of your favorite series.
15:01If I am notified in advance!
15:03Watch four episodes of Ça ne se demande pas, on Ami-Télé tonight, starting at 8 p.m.
15:08Damn you lucky!
15:11At birth, I was almost blind.
15:14Gaétan Banville has been tuning and repairing pianos for over 50 years.
15:18It was all Antoine who tuned this piano.
15:21And his reputation is well established.
15:23It's beautiful!
15:24It's really satisfying!
15:26With Juliette, he travels the roads of Bas-Saint-Laurent and the Côte-Nord
15:30to take care of the instruments of its many customers.
15:3340 years of traveling together!
15:3540 years that you agree!
15:36Yeah, yeah!
15:38A story of music and heart.
15:40He said to me, you're the kind of woman I would like to have.
15:45That had never been said to me.
15:47We finish this with a nice kiss.
15:49The documentary by mutual agreement.
15:52Saturday 6 p.m. on AmiTélé.
16:00When your back hurts, life hurts.
16:03Robax's dual-action formula relieves pain and relaxes tense muscles.
16:07Your back as before with Robax.
16:10Mysterious murders.
16:11The weapon was wiped clean.
16:12The angle of the mark seems to indicate that it was the victim himself who cleaned it.
16:16Would that mean he wanted to cover up for his murderer?
16:18Sordid crimes.
16:19Would he have been sold by the feet to empty him?
16:22As...
16:23Like a little pig.
16:24Thanks to their complicity, they manage to solve the most difficult cases.
16:28You're right, Astrid.
16:29Yes.
16:30And now it's time to make all the necessary messes for him.
16:32so that the person responsible is apprehended.
16:34Astrid and Raphael.
16:35Tuesday 9 p.m. on AmiTélé.
16:40The dogs Miro, Philiz, Dipsy and Rosabelle.
16:45The rabbits, Nicole and Simone.
16:47Prune, the guinea pig.
16:49Plum!
16:50The kittens, Zach and Zoe.
16:52The horses, Diosa and Pascal.
16:54All these animals have one thing in common.
16:57Animals transform lives.
16:58These animals who want the best for us.
17:00The new season begins on June 4th only on AmiTélé.
17:04And watch all episodes of the first season on Ami+.
17:09I have the great pleasure of having Siam Cortaz at my side,
17:13the director of the film Fairy Fingers,
17:15who came to present it to us today.
17:17Hello, Siam.
17:18Good morning.
17:19It's a wonderful film.
17:20I loved the beginning,
17:22because the film opens with a lullaby actually sung in Arabic.
17:27Yes, it is a psalm.
17:28Okay.
17:29Yes, it is a psalm in Arabic,
17:30and then the children learned.
17:33Yes, I am from Lebanon.
17:34From Lebanon.
17:35So, you arrived here in Quebec several years ago.
17:38Yes, in 72 to do a master's degree in educational sciences.
17:41Then after, I went back to Lebanon for two years,
17:44and I came back and settled down.
17:46And that was it for life.
17:48For life, yes.
17:49I definitely wanted to come back, yes.
17:51And how did it go?
17:52It went very well.
17:53It went very well.
17:54It went very well.
17:55It went very well.
17:56It went very well.
17:57It went very well.
17:58It went very well.
17:59It went very well.
18:00It went very well.
18:01I came back.
18:02I came back, yes.
18:03And how did this idea for this film come about?
18:05inspired by your son?
18:06Yes, actually, it was during the pandemic,
18:10when Paul told me he was going to have a baby.
18:14Paul, is this your boy?
18:15Yes, Paul, he's my boy,
18:17of which I am extremely proud,
18:20as seen in the movie.
18:23And I always thought about paying tribute to him.
18:25Then I said, ah, he's going to have a child,
18:27It's time to pay tribute to him.
18:29So, I wrote the script,
18:31I applied for a scholarship
18:35at the Council of Arts and Letters.
18:40And it was accepted?
18:41And I got it, yes.
18:42And we have the great happiness
18:43to watch an excerpt from your film.
18:46We're looking at this.
18:47There was like a mirror
18:49and I could see the birth.
18:53And there I saw a hand.
18:56There, I said, Adele, what's wrong with her hand?
19:00Then there, the doctor and my husband were...
19:04It's like there's silence.
19:07And then they bring it to me,
19:10not just one hand, it's both.
19:12They didn't have both hands.
19:15It's from the start,
19:17That's how my body was made.
19:19And no, I have no pain,
19:22I have no less feeling, even the opposite.
19:25It was all the sensations
19:27that the world will have at their fingertips,
19:30at their fingertips.
19:32For me, it really developed around my stumps.
19:36This is what helps me to have my extreme illness
19:38because I work for everything,
19:41literally everything with my two hands.
19:43So for Paul, it was still from birth.
19:46So for him, he learned to live like that from the start.
19:49But for the mother, at the time of delivery,
19:52It must have been a shock, of course.
19:55Yes, it's a shock.
19:57Because we didn't see it on the ultrasound.
20:02No, that's it, it was a surprise at that time.
20:04In this situation,
20:06I was completely distraught,
20:08total helplessness.
20:10And then, it's like I say in the film,
20:12When you don't know what to do, you do nothing.
20:16So I didn't do anything.
20:18The film was originally supposed to be called
20:21“My master, my teacher,”
20:23because he taught me.
20:26We were inspired by him.
20:28He was our master.
20:29He was really fascinating.
20:31When he started doing things,
20:33It's extraordinary.
20:35Towards the end, he became the magnet of the house.
20:38He's really handy.
20:40Funny to say, he's very hands-on.
20:42He can do a lot of things with his hands.
20:44How, I often don't know,
20:46It's really impressive how he does it.
20:50As he often says in the film,
20:53It's with both hands.
20:55How he does it is truly fascinating.
20:58It's also special for a mother, though.
21:01to see his son grow up with certain difficulties,
21:04but which ultimately impress.
21:06I even think we are happy to see
21:08small damages that he manages to do all of a sudden.
21:12That was the best moment of my life.
21:15I'm like a little bit not very messy,
21:17So the mess, I accepted.
21:19But when he started, I see that he emptied
21:21the box of tissues.
21:23Wow! Bravo! Go for it!
21:25You can break, you can do anything,
21:27but do them with your hands,
21:29like everyone else.
21:31Make them like all the other children.
21:33All this was captured by your camera
21:35throughout their childhood,
21:37to the two boys.
21:39It makes for beautiful images.
21:41It was easy to take all that
21:43to build the film.
21:45Initially, the videos,
21:47there was no question
21:49to have videos, it was just
21:51we were looking at pictures and stuff.
21:53But the director,
21:55the implementation advisor
21:57and all that, everyone says "Don't you have
21:59of videos?" I said, "Yes, but it's long.
22:01How am I going to do it? » But ultimately,
22:03I spent hours and hours typing
22:05and I had forgotten.
22:07We could have done
22:09a good two hours with just
22:11the videos,
22:13and even
22:15up to 4 years, 5 years.
22:17I think this is the most interesting period
22:19where we see him doing things
22:21extraordinary.
22:23The film is currently available to watch.
22:25It is available on YouTube.
22:27“Fairy Fingers” is definitely worth seeing.
22:29because it's beautiful. I think it gives
22:31a lot of hope for families too
22:33who have to experience similar situations.
22:35Yes, I'm happy.
22:37A big, big thank you, Siam, for coming.
22:39tell us about it today.
22:41It is I who thank you.
22:43We are preparing for our column
22:45with tribute to mothers
22:47by Joannie Dupré-Roussel.
22:53Hello, Joannie.
22:55Today for the special
22:57Mother's Day, I feel that
22:59you made yourself happy. You're going to tell us
23:01present three mothers
23:03that inspire you. Yes, that,
23:05This is really a sweet column.
23:07I'm really happy. It's a little gift to myself.
23:09I wanted to give back
23:11tribute to all mothers.
23:13We deserve a tribute on Mother's Day,
23:15obviously, but
23:17I definitely wanted to talk about moms.
23:19who are warriors, therefore mothers
23:21who work very, very hard for their
23:23children, fighters
23:25and who inspire me
23:27in different ways.
23:29I could have paid tribute to
23:31lots of moms coming out. There are a lot of them,
23:33but it's women that I have
23:35had on my journey or which had an influence
23:37on me directly.
23:39That's why I chose to talk about them.
23:41I'll start with Caroline.
23:43Caroline, who is the mother of
23:45Maëlie.
23:47Caroline, she's a mom
23:49who remained in care for a year
23:51intensive care at the hospital
23:53Sainte-Justine because Maëlie,
23:55who was 5 years old at that time,
23:57had a heart defect.
23:59It still required very careful care.
24:01important.
24:03Maëlie,
24:05she wanted to keep this
24:07kind of magic,
24:09highlight special holidays.
24:11Halloween,
24:13Christmas. They stayed long enough.
24:15to the hospital to be able to
24:17live those moments.
24:19It's important to highlight beautiful moments
24:21at that time.
24:23Besides, we see her in costume in the photo.
24:25They are all beautiful.
24:29That was their mark.
24:31to appropriate
24:33this hospitalization and to emphasize
24:35those moments. They created great
24:37beautiful things. Unfortunately, Maëlie
24:39died after a
24:41year of hospitalization.
24:43His mother,
24:45to start this
24:47mourning, because obviously, we never finish
24:49never this kind of mourning,
24:51to begin this beginning,
24:53created the Maëlie funds.
24:55It is with the Foundation
24:57Sainte-Justine. These are funds that are directly
24:59for intensive care.
25:01Exactly, we are going
25:03to perpetuate this magic.
25:05The holidays,
25:07these things. They will come from
25:09costumed characters,
25:11decorations.
25:13Their next project is really
25:15to work on the comfort of
25:17parents, the hospital, especially the parents
25:19who have little babies.
25:21It may be less suitable for intensive care.
25:23That's their next goal.
25:25with the money that will be collected.
25:27That's really it
25:29Caroline, whom I introduced to you.
25:31Next, I'll tell you about Melanie.
25:33Melanie is the mother
25:35of Léonie, who is 15 years old.
25:37Melanie,
25:39I don't know her personally,
25:41but it's a mom who has a
25:43impact, perhaps without knowing it,
25:45on many parents.
25:47I could say about 4,000 families in Quebec.
25:49She's a mom
25:51who put his career aside
25:53professional to take care of
25:55entirely from his daughter
25:57who has an orphan disease
25:59who still has very great needs.
26:01Another mom
26:03fighter who brought to light
26:05financial difficulties,
26:07the financial impacts that this implies
26:09and species
26:11of inequalities too.
26:15If I place my child in a family
26:17host family
26:19is entitled to subsidies.
26:21If I keep my child, I don't have access
26:23to these subsidies.
26:25That's how it started.
26:27That was it
26:29which was brought to light.
26:31Melanie and other mothers
26:33created a movement
26:35which is called Parents until the end
26:37and who led
26:39to the creation of an amount
26:41additional
26:43to benefits for disabled children.
26:47Many parents benefit from this.
26:49Thanks to his work, indeed.
26:51She works really hard in the media.
26:53Currently she is speaking
26:55many of the injustices with social assistance.
26:59If you're interested, I'm sure
27:01that if you look for his name,
27:03you will see this news
27:05battles which she highlights.
27:07Finally, we have a third
27:09Mom.
27:11It's Enya. Enya and Charlie,
27:13I know them personally. They are sweethearts.
27:15Enya inspires me by
27:17his awareness
27:19to pediatric organ donation.
27:21Already, organ donation,
27:23it's a sensitive subject,
27:25but pediatric even more so.
27:27She opens the dialogue on
27:29think about it.
27:31If ever my child had
27:33an accident,
27:35would I be able to?
27:37Would that be a possibility?
27:39There are children waiting for transplants
27:41and who do not necessarily need it.
27:43Eventually,
27:45I just want to say a little bit
27:47Happy Mother's Day to Camille,
27:49our host
27:51which is becoming
27:53Mom quietly.
27:55Effectively.
27:57I really wish you
27:59a very happy Mother's Day.
28:01That's great. To you too,
28:03of course.
28:05Thank you so much
28:07for this beautiful column
28:09which fills our hearts with beautiful things.
28:11This is very interesting,
28:13Very inspiring. Thank you.
28:15Thank you very much to the whole team.
28:17Thanks to the house too.
28:19Thank you to all the mothers
28:21and above all, happy Mother's Day.
28:23On that note, see you next week.
28:49This week on the show
29:11Recipe ideas
29:13for people with dysphagia
29:15I wanted the book
29:17be a simple recipe
29:19and which is at the same time a guide.
29:21And a meeting that feels good
29:23with horses, llamas
29:25and even kangaroos.
29:27We know that animal welfare
29:29and human well-being are married
29:31super good together
29:33then it's been a while
29:35which are wonderful and magical.
29:37Be there.
29:39It's my business, Saturday 3 p.m.
29:41on Ami-Télé.
29:43In a moment,
29:45Friend-TV
29:47TV that includes everyone
29:51This show is aimed at audiences of all ages.
29:55This is an original production of Ami-Télé
29:57presented with integrated described video.
29:59A Sphère Média production
30:01for Ami-Télé.
30:03Instead of giving up
30:05shouting blasphemies
30:07You find that in life,
30:09there is a solution to every problem
30:11We're coming to live with you
30:13We'll sort this out
30:15Because that's the mission.
30:17No more complicated than that
30:31François, today we are in Bécancour
30:33We're going to meet Jessica
30:35I think she will be accompanied
30:37of his partner Alexandre and his daughter Kellyanne
30:39Yes, we just helped him
30:41She has a storage and accessibility problem
30:43in his wardrobe
30:45Jessica is in a wheelchair
30:47It's here
30:49It says ring and enter
30:51We'll ring the bell and go home.
30:53Hello Jessica
30:55My name is François
30:57Jessica, thank you for having us.
30:59in your living room
31:01Very beautiful house by the way
31:03Can you introduce your family to us?
31:05I am here with my partner
31:07Alexandre Vertil
31:09His daughter Kellyanne
31:11Can you tell us a little about yourself?
31:13The name of your illness?
31:15I have Friedreich's ataxia.
31:17It is a degenerative disease
31:19at the neurological level
31:21What it does
31:23it's that he lacks iron
31:25in my nerve cells
31:27Fact that...
Recommandations
29:33
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À suivre
29:07
28:31
28:46
29:57
23:39
5:04
29:12
38:57
4:51
28:51
37:08
35:50
49:27
59:17
39:00
21:07
59:16