Amang inaalagaan ng anak dahil may malubhang kapansanan, kumusta na ngayon? | Reporter’s Notebook - video Dailymotion

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Aired (December 28, 2024): Isang anak ang nagsakripisyo para sa kanyang amang may matinding karamdaman. Kumusta na kaya ang kanilang buhay matapos maitampok sa #ReportersNotebook? Alamin sa video.

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00:00Four years ago, we met a man who had an extraordinary feeling.

00:07He couldn't stop the music and movement of his body.

00:12He couldn't stand up and move alone.

00:16This is the condition of Marlon from Mamurao, Occidental, Mindoro.

00:34His father, Anna Marie, has been taking care of Marlon since he was seven years old.

00:41Why are you doing all of this for your father?

00:46I love my father.

00:50If my father wasn't here, we wouldn't be here.

00:58The sad thing is, even though Adonis is his younger brother,

01:06he is starting to experience symptoms like Marlon's.

01:11But despite the unstoppable movement of some parts of his body,

01:21Adonis is still a tricycle driver.

01:26I feel like I can't ride a tricycle anymore.

01:31I can't even look at the road.

01:35In Oton, Iloilo.

01:37Danzel, who is 11 years old, is also suffering from the same symptoms.

01:43Because she can't walk, she sits on a rubber mat and wheelchair all day long.

01:50It hurts that she can't walk.

01:53She can't do what she wants.

01:56She can't play or run.

01:58It's okay because I can't leave this place.

02:02In a country where it's hard to get sick,

02:04it is considered a rare disease that is hard to find a cure.

02:13A few years have passed,

02:16how is Marlon, Adonis, and Danzel?

02:29In 2020, I first met the Roga family.

02:33From Manila, they traveled for 12 hours to their hometown,

02:37in Mamburau, Occidental Mindoro.

02:41Because it was just the beginning of the family's day

02:44when we were able to meet Ana Marie,

02:47who is being fed by her father, Marlon Roga.

02:50He is the one who serves his father's feet and hands.

02:54From feeding,

03:01to bathing.

03:03When did you start taking responsibility for your father?

03:09Five years old.

03:12How old are you now?

03:14Eleven.

03:15It's been a long time.

03:22How do you make him stronger?

03:25I tell him that he's fighting.

03:31Why are you doing all this for your father?

03:35Because I love my father.

03:40Because without my father, we wouldn't be here.

03:52In 2010, Marlon felt a sense of weakness in his teeth.

03:57Five years later,

03:59he lost his ability to speak properly and to walk.

04:04Marlon,

04:06you're in a difficult situation,

04:09but we're thankful that you have a son like that.

04:13Yes.

04:17What do you tell him when you're alone?

04:21I tell him,

04:23I love my father.

04:25I love my father.

04:28I love my father.

04:34After filing a case against his father,

04:37Anna Marie got ready to go to school.

04:43Her father sent her to the store where her mother, Anna Lynn, works.

04:50Nice to meet you.

05:02It's time for Anna Marie to go to class.

05:08What do you want to see on your graduation day?

05:13I want my father to look up to me when I graduate from grade 6.

05:17What is your dream for yourself?

05:20I want to be an engineer so I can help my family.

05:25At this time, Anna Lynn still doesn't know about her husband's illness.

05:30Anna Lynn also has a problem on how to take care of her husband.

05:34They still need to cross the sea and travel for 7 hours

05:39to bring Marlon to the hospital where there's a specialist.

05:42But the family can't afford it.

05:46In 2011, they finally brought Marlon to the hospital.

05:51If I don't look for a job, they can't afford it.

05:55It's a sacrifice for their father.

05:58As long as I'm strong, I can do it.

06:02But we found out that even though Marlon and Adonis are siblings,

06:07they started experiencing the same symptoms.

06:12But despite the sound of a hammer and nails,

06:15Adonis is fighting the symptoms and continues to help his family.

06:21I thought that I might get the same illness.

06:25But when I was 28, I told myself that I didn't feel anything.

06:31Were they also 28 when they got the same illness?

06:35Yes, they were both 28.

06:36In 2018, I felt something in my body.

06:39I felt like my legs were getting weak.

06:41I was lucky.

06:42I felt like my legs were getting weak.

06:45I couldn't move my legs.

06:47I didn't notice it.

06:48I kept moving my legs.

06:50I felt something in my knee.

06:54When I moved it, it hurt.

06:57I felt something there.

07:00How old are you?

07:01I'm 33 years old.

07:03It's been a few months.

07:05I can't speak.

07:08To know how the siblings are feeling,

07:10the reporter's notebook was connected to the local government of Mamburau.

07:30With the help of the local government of Mamburau,

07:33the siblings of Marlon and Adonis will cross the island to be examined by specialists.

07:53Marlon and Adonis were brought to Batangas Medical Center

07:56to be examined by a specialist.

08:01But according to the doctor,

08:03they need to undergo genetic testing

08:06to confirm their illness.

08:10So from Batangas,

08:11we brought the siblings to a private hospital in Quezon City.

08:22What we see right now is they have dystonia,

08:26twisting of extremities.

08:29Extremities because of the contraction of the muscles.

08:32Extremities of the arms, of the legs.

08:35Marlon has inversion of the legs already.

08:40And both of them have retrocollis,

08:43or the backward twisting of the neck.

08:48Based on the initial examination,

08:50they feel not far from X-linked dystonia, Parkinsonism.

08:56Marlon and Adonis,

08:57a rare progressive movement disorder

09:00that until now,

09:01no one has seen a cure.

09:0430 to 50 out of every 100,000 people

09:08have this disease in the world.

09:15After 4 years,

09:16we again examined the siblings of Roga.

09:20This is Marlon's condition.

09:23He can move on his own,

09:25no matter what.

09:27Marlon can also talk.

09:29How are you?

09:30I'm okay.

09:33How is your speech?

09:35Is it okay?

09:37I'm okay.

09:39I can still talk.

09:42You can walk,

09:43no matter what?

09:45I can still walk.

09:48I can still walk.

09:50I can still walk.

09:51I can walk.

09:52I can walk.

09:53I can walk.

09:54You can walk?

09:55Yes.

09:56I can walk.

09:57I can walk.

09:58But do you feel that the change is big?

10:04Yes, it's big.

10:06We first met him far away.

10:11Wow,

10:13you're showing off your muscles now.

10:16His son is Annamarie.

10:18He's in Grade 12 now,

10:20and he will finish high school next year.

10:23Because of the gradual improvement of his father's condition,

10:27he is able to focus more on his studies.

10:30How is your life?

10:33It's okay.

10:35You're smiling now.

10:37Does that mean that your situation is getting better,

10:42especially your father?

10:45Yes, my father is getting fatter.

10:47I'm happy that my father is getting better,

10:51that his body is slowly changing,

10:53especially his physical condition.

10:55It helps me to focus more on my studies.

11:01Good news,

11:02Annamarie is now an honor student.

11:04How are your grades?

11:06I'm with honors.

11:08Wow, that's great.

11:12What are your plans for the future?

11:14I really want to be an engineer,

11:16but I have second choices,

11:18I want to be a police officer.

11:21Annamarie will continue to tell us how she was able to help them.

11:25From telling their stories in the television,

11:28to helping with a foundation

11:31to provide the medicines that Marlon needs.

11:35When the program was aired on TV,

11:39many people helped us.

11:42Someone gave us food for my family.

11:48Thank you very much, Annamarie.

11:50Thank you very much.

11:52Someone gave us food for my family.

11:57Thank you very much.

12:01Did you notice any other help

12:03that came to your father from his stories?

12:09We were able to build a nice house.

12:16And in January 2021,

12:19another dream of the couple came true.

12:22Marlon and Annaline got married.

12:25We're getting married.

12:27You're getting married?

12:29Yes.

12:30Did your decision to get married help you?

12:34Did you notice that you're getting better and stronger?

12:38Yes.

12:41But if Marlon's condition is good,

12:46let's go back to the news of Adonis' wife, Janice.

12:52Before, Adonis was able to work as a tricycle driver.

12:58Now, she can't walk alone.

13:01It seems like Adonis' condition is getting worse.

13:04What happened?

13:06We don't know what happened.

13:09After a few years,

13:11Adonis became thinner.

13:13He couldn't stand properly.

13:17It could be because the phases of the XDP

13:21were just going through one by one.

13:24When I say phases,

13:26typically, the XDP manifests around the 30th to 40th decade of life.

13:33I think that could be the reason

13:35why the situation of Adonis was like that.

13:39Now, the later manifestation of Adonis

13:42is more severe.

13:44You're also a father now

13:48because of your wife's condition.

13:52How difficult is that situation?

13:56I'm sorry.

13:57I feel that it's really difficult

14:00because I have children who are studying.

14:04My income is not enough

14:07to cover all of that.

14:10That's the hardship that I'm experiencing.

14:12But I can do it.

14:16Now, Janice hopes that her husband's condition will get better

14:20just like what happened to her brother, Marlon.

14:22That's why I told my husband to be positive.

14:27If his condition gets worse,

14:30he won't be able to take care of me.

14:33To monitor the health of Marlon and Adonis,

14:38we went to the local government of Manggurao.

14:42We saw the development of his brother.

14:46If he can do it, you can do it too.

14:52The brothers were immediately visited and examined by health workers.

14:56We brought you food and relief goods.

15:01They also gave some food packages for the family.

15:07They also assured that they will monitor Marlon and Adonis.

15:12The Reporters' Notebook also provided a little help

15:15for the treatment of the brothers.

15:17This will help them so that their muscles won't be cramped

15:22and their necks won't be cramped because they won't move.

15:27Thank you so much for covering for us.

15:32This has been a huge help, especially for Marlon's family.

Amang inaalagaan ng anak dahil may malubhang kapansanan, kumusta na ngayon? | Reporter’s Notebook

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