Butterfly Girl | movie | 2014 | Official Trailer - video Dailymotion

At first glance, it is not obvious that Abbie Evans lives with a life-threatening skin disease.  She is a typical teenag | dG1fRk5mY19vQlVFNkU

Transcript

00:00The girl was fearless, wouldn't you rather have her be fearless than walk around scared

00:17of everything?

00:18I can't handle anything holding me back.

00:27I've got a rare skin disease called Epidermolysis Bullosa.

00:31My skin is so sensitive that the slightest touch should make my skin fall off.

00:37This hand is not yet done until it's done.

00:41I feel like my life is frozen.

00:43I'm totally a caged bird sometimes, being tied down at home with mom and dad.

00:50She has the same wants and needs as any other 18 year old that's starting to have some independence.

00:56Now that she's an adult, I'm like, how are we going to get through this part of her life?

01:02I want to live life to the fullest because I don't know how long I've got left.

01:07Damn it, I'm a rebel.

01:09I want to take a break from all this medical stuff.

01:12But who's going to take care of you?

01:14I think I can take care of myself now.

01:26Look at the butterflies!

01:31I am wondering if you guys had any opening clinical trials that you needed people for?

01:38I want to go alone.

01:43I don't have an easy life whatsoever.

01:46But I'm never going to give up.

01:48And I actually like it.

01:50I'm just a badass.

01:55I'm a badass.