I Am: Celine Dion (2024)
I Am: Celine Dion is a 2024 American documentary film directed by Irene Taylor, which centers around Canadian singer Celine Dion.[3] The film details Dion's life, career accomplishments and battle with stiff-person syndrome. It premiered in New York City on 17 June 2024 and was given a limited theatrical release on 21 June 2024 by Amazon MGM Studios through the Metro-Goldwyn-Mayer.[4] It became available for streaming on 25 June 2024, on Amazon Prime Video.[5] In Francophone countries, the film was titled Je suis: Céline Dion.
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Short filmTranscript
00:00:00Thank you for watching.
00:00:30Thank you for watching.
00:00:50Thank you for watching.
00:01:17My dream is to be an international star and to be able to sing all my life.
00:01:47My dream is to be an international star and to be able to sing all my life.
00:02:01My dream is to be an international star and to be able to sing all my life.
00:02:14Here's the sound man, okay?
00:02:17If you don't love me, if you don't love me, I love you.
00:02:25And if I love you, if I love you, take care of yourself.
00:02:39Coming through.
00:02:42Coming through.
00:02:45All right.
00:02:46Thank you.
00:02:47Hi.
00:02:48This is my camera man.
00:02:49Thank you, sir.
00:02:50All right.
00:02:51You got to tell her where she sits.
00:02:52Where do you want me to sit, Mr. Director?
00:02:57Where we decided.
00:03:00Let's go the other way.
00:03:02Yeah, one more.
00:03:04Cool.
00:03:05And I'm going to go up a little bit on this.
00:03:09All right.
00:03:10Wow, this is weird.
00:03:13Cool.
00:03:14Okay, what's your favorite color?
00:03:23I thought you were going to ask me a very easy question and that's not an easy question for me to answer.
00:03:27Mine's red.
00:03:29I like that.
00:03:30It's love.
00:03:31I like that.
00:03:32What is yours?
00:03:33Red.
00:03:34I like red.
00:03:35For real?
00:03:36Yeah.
00:03:37You don't have to say red because you're twins.
00:03:38No, for real.
00:03:39What happened?
00:03:40Are you in love?
00:03:42Don't keep any secrets from me, boy.
00:03:45Okay.
00:03:46What is your second question?
00:03:48If you had to go anywhere, where would you go?
00:03:50Like a country or a state?
00:03:56I know you know that, that I've traveled the world many times.
00:04:04And do you believe me if I tell you that even though I traveled the world that I didn't really see anything?
00:04:12Strange, isn't it?
00:04:15Sometimes you call that it's a price to pay.
00:04:20I mean, Scott, I've talked too much.
00:04:22It's enough.
00:04:23Interview's over.
00:04:50I love that rock and roll.
00:04:52But only now my love has grown.
00:04:56And it gets stronger in every way.
00:05:02And it gets deeper, let me say.
00:05:07And it gets higher day by day.
00:05:13And do I love you, my, oh, my?
00:05:18Can't rip a deep mountain higher.
00:05:26Yes, this is the second aid.
00:05:28Hi, ma'am, how are you doing?
00:05:29I need to call the fire department, please, and rescue you.
00:05:31Okay, I'll call the fire department.
00:05:33Okay.
00:05:3411001.
00:05:36Excuse me.
00:05:37So, Lynn, if you have pain, move your fingers.
00:05:40Push into my hand if you have pain.
00:05:44Ready?
00:05:45One, two, three.
00:05:47There we go.
00:05:50All right.
00:05:51Do you feel better on your side?
00:05:53No?
00:05:54Yeah?
00:05:55So she's had an issue that in the past she doesn't.
00:06:01It's gonna be okay.
00:06:09Shock waves still reverberating through the entertainment world this morning
00:06:13after singer Celine Dion revealing she has been diagnosed with stiff person syndrome.
00:06:18It's a condition that attacks the nervous system.
00:06:20It is extremely rare.
00:06:22You never want to be a rarity in medicine or science.
00:06:25Stiff person syndrome.
00:06:26Stiff person syndrome.
00:06:28Stiff person syndrome, also called SPS, affects one or two in a million people,
00:06:34twice as many women as men.
00:06:36Stiff person syndrome is what doctors say is muscles rebelling against the body,
00:06:40causing severe spasms.
00:06:42Triggered by a heightened sensitivity to noise, touch, or emotional stress.
00:06:50The disease could be protected.
00:06:51The disease could be protected.
00:06:53The disease could be protected.
00:06:54The disease could be protected.
00:06:55The disease could be protected.
00:06:56The disease could be protected.
00:06:57The disease could be protected.
00:06:58The disease could be protected.
00:06:59The disease could be protected.
00:07:00The disease could be protected.
00:07:01The disease could be protected.
00:07:02The disease could be protected.
00:07:03The disease could be protected.
00:07:04The disease could be protected.
00:07:05The disease could be protected.
00:07:06The disease could be protected.
00:07:07The disease could be protected.
00:07:08The disease could be protected.
00:07:09The disease could be protected.
00:07:10The disease could be protected.
00:07:11The disease could be protected.
00:07:12The disease could be protected.
00:07:13The disease could be protected.
00:07:14The disease could be protected.
00:07:15The disease could be protected.
00:07:16The disease could be protected.
00:07:17The disease could be protected.
00:07:18The disease could be protected.
00:07:19The disease could be protected.
00:07:20The disease could be protected.
00:07:21The disease could be protected.
00:07:22The disease could be protected.
00:07:23The disease could be protected.
00:07:24The disease could be protected.
00:07:25The disease could be protected.
00:07:26The disease could be protected.
00:07:27The disease could be protected.
00:07:28The disease could be protected.
00:07:29The disease could be protected.
00:07:30The disease could be protected.
00:07:31The disease could be protected.
00:07:32The disease could be protected.
00:07:33The disease could be protected.
00:07:34The disease could be protected.
00:07:35The disease could be protected.
00:07:36The disease could be protected.
00:07:37The disease could be protected.
00:07:38The disease could be protected.
00:07:39The disease could be protected.
00:07:40The disease could be protected.
00:07:41The disease could be protected.
00:07:42The disease could be protected.
00:07:43The disease could be protected.
00:07:44The disease could be protected.
00:07:45The disease could be protected.
00:07:46The disease could be protected.
00:07:48Mon amour, c'est à ton tour d'aller à l'école.
00:07:50D'accord.
00:07:53Allez, le café. Je t'adore.
00:07:55Bonjour.
00:07:56Merci, toi tu fais tout pour moi.
00:07:57Je suis te procédure, ton retainer là-dedans.
00:07:59Marina va aller avec toi.
00:08:00Ok.
00:08:01Je t'aime.
00:08:02Bonjour.
00:08:05Bye, mon amour.
00:08:06Bye.
00:08:07Hello, Jessica.
00:08:08Hello.
00:08:09I'm so sorry, honey.
00:08:10Thank you so much for waiting.
00:08:11I'm just going to take my medicine for lunch.
00:08:12Ok.
00:08:13Can I add two Tylenol to that?
00:08:14Of course.
00:08:15Ok.
00:08:16The one that are super rough and tough.
00:08:17Super rough and tough.
00:08:18The big boys.
00:08:19Thank you.
00:08:20Thank you so much, hon.
00:08:21Of course.
00:08:22Bye.
00:08:23Bye.
00:08:24Bye.
00:08:25Bye.
00:08:26Bye.
00:08:27Bye.
00:08:28Bye.
00:08:29Bye.
00:08:30Bye.
00:08:31Bye.
00:08:32Bye.
00:08:33Bye.
00:08:34Bye.
00:08:35Bye.
00:08:36Bye.
00:08:37Bye.
00:08:38Bye.
00:08:39Bye.
00:08:40Bye.
00:08:41Bye.
00:08:42Bye.
00:08:43Thanks so much, hon.
00:08:44Of course.
00:08:45I'm going to have to find water somewhere.
00:09:00This are very, very cozy.
00:09:05You know, it's a question of seventeen years.
00:09:28I have been, seventeen years ago I started to experience some voice spasming.
00:09:40This is the way it started.
00:09:44I woke up one morning and I had my breakfast and after having my breakfast, my voice started
00:09:52to go up.
00:09:55And it freaked me out a little bit because normally when you're tired as a singer because
00:10:07you did a show the night before, your voice would go, I mean, roughly half a key down
00:10:13or one note down.
00:10:17It would go down a little bit so you warm up your voice and you can stretch it like
00:10:21Play-Doh and all that.
00:10:24And then you have more bass which is really good because if there's no lows, there's no
00:10:29highs.
00:10:38If every string of my notes are strings, for example, like elastic, like down, the next
00:10:45time that I would try it would go, and the third time, and cracking.
00:10:55I cannot bring it down.
00:10:58It's like a muscle thing.
00:11:00And the second time it's here, the third time it's here, and then it goes.
00:11:03Same thing with the high.
00:11:05One high, second high, third high.
00:11:08So I couldn't do the sound check too long, the warm up too long.
00:11:13But if you don't warm up too long, long enough, you can hurt yourself.
00:11:17So I was scared.
00:11:21I didn't know what to do.
00:11:24And today the diagnosis, SPS, which is stiff person syndrome.
00:11:34It's in the muscle.
00:11:35It's in the tendons.
00:11:36It's in the nerves.
00:11:39You can't see anything because it's not seeable.
00:11:43How many people in that pouch?
00:11:48A thousand to 15,000 different plasma donors in order to pull that much immunoglobulin,
00:11:56that many antibodies.
00:11:57Last year, I got to a point that I couldn't walk.
00:12:10I was losing my balance a lot.
00:12:14It was hard to walk, a lot of pain, and I can't use my voice yet.
00:12:29Music, I miss it a lot, but also the people, I miss them.
00:12:59It gives me a lot of energy, a lot, a lot, and I think that's the gift of the show business,
00:13:24the stage.
00:13:26And I think that's what's funny about it.
00:13:30I think that when you're an artist, when you're in the soul, artist one day, artist always,
00:13:40you can't do without it.
00:13:55Look at me.
00:14:05There.
00:14:06You're good.
00:14:07All great.
00:14:08I'm great.
00:14:09I love you.
00:14:13She's a blanker.
00:14:14She said, I love you too.
00:14:25It's not hard to do a show, you know?
00:14:45It's hard to cancel a show.
00:14:49If somebody sees me have a good time for a moment with my family, and I was supposed
00:14:56to be on stage, and they had a ticket that night, they have the right to come to me and
00:15:03say, hey, I can't just do whatever I want.
00:15:11I can't go out.
00:15:13I'm stuck.
00:15:44I'm stuck.
00:15:45I'm stuck.
00:15:46I'm stuck.
00:15:47I'm stuck.
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00:16:00I'm stuck.
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00:17:2216
00:17:34Before I got really hit with SPS, my voice was the conductor of my life.
00:17:39It it was it I was following it
00:17:44You lead the way I follow you and I was okay with that because I was having a great time
00:17:52When your voice brings you joy
00:17:56You're the best of yourself
00:18:00You can be the leader
00:18:03My ego is not that big
00:18:06If you want to take that role take it I don't care I'm having a good time here
00:18:23So
00:18:30Sometimes I
00:18:36Oh
00:18:53When I try to
00:18:56breathe
00:18:57My lungs are fine. It's what's in front of my lungs
00:19:01that's so rigid because of stiff person syndrome that it's like
00:19:08It's like I know you that's what happens it's like I know what I want to do
00:19:15And now you can show me
00:19:17Yeah, and that's what happens and it's very difficult for me
00:19:22to hear that
00:19:25To show this to you
00:19:27Oh
00:19:57I
00:20:07Think I was very good. I
00:20:12Think I hit some stuff that was amazing
00:20:28But there's been moments where I
00:20:33Had to go to the studio and I knew they wanted Celindia
00:20:42Who's Celindia
00:20:45Celindia
00:20:47Is the one who's I?
00:20:50hold by myself anymore to the highest note ever and whatever and
00:20:57She's the best
00:21:22Thank you, sir
00:21:27I
00:21:30Feel like Liberace here we go on your left and on your
00:21:38It's a warehouse
00:21:42It can be overwhelming
00:21:48But when I go there I see my life and I love every piece of it
00:21:54It's my unique tutu dress
00:22:05Come closer
00:22:06That's a very old Dior if I remember I'm just gonna open this one. Yeah, it's Dior
00:22:14The girl knows her stuff
00:22:17when a girl
00:22:19loves her shoes
00:22:21She always make them fit I
00:22:25Have worn shoes my friend. My toes were like this because they didn't have my size
00:22:32Every time I went to a store and I love those shoes. They said what size are you ma'am?
00:22:36I said no, you don't understand. What size do you have?
00:22:39I'll make them work. I'll make them fit. I will walk the shoe. I walk the shoe the shoe. Don't walk me. I've worked
00:22:47shoes with my feet like this and
00:22:50Sometimes like this to hold on to them from 6 to 10 give it to me. I love them. Here we go
00:23:03I
00:23:04wore my dress to an event and
00:23:08Then what a piece like this or a piece like that or or dress like this
00:23:13It's difficult to wear again because it had such a big impact
00:23:19I
00:23:32Can the old old old old days
00:23:35Women had one hat
00:23:37one pair of gloves two dresses one black pair of shoes and
00:23:43And
00:23:45It was classic effortless and so chic
00:24:02For me to put
00:24:04these pants and I have to put a shirt and
00:24:09We wanted the shirt to have a collar
00:24:11and
00:24:12white like sleeves
00:24:17We they made it like it was very very fitted I'll take the whole thing
00:24:24So obviously there's a collar over here
00:24:27Sleeveless so it takes less space into the sleeves of the jacket itself. So I don't have to go
00:24:34Keep it. I'm too sweaty. It doesn't fit
00:24:38It's not as hot
00:24:40So I have I have the collar
00:24:42So I have my jacket
00:24:45But where's the sleeve?
00:24:48so all the sleeves are here and
00:24:51With me showing you that
00:24:56You see the snaps over here
00:25:01One
00:25:03Two snaps took took just for the white to come out because it looks elegant and clean and sharp
00:25:09but over here
00:25:10I don't have all that excess and I can't move and when I go like this it comes out and then we don't
00:25:17but a lot of people had to
00:25:21Think of that and put time and effort and making sense with all of that. It's a snap on it's a snap out
00:25:28It's a big zipper instead of an invisible and it's a flap and it's a velcro, but none of that shows
00:25:35None of that shows
00:25:39and that's the magic of show business, but if I may say I
00:25:45Think it was I think we did create our own magic
00:26:00My band
00:26:02My backup singers. I want them to feel good and look good. Do you like yourself?
00:26:07When you like yourself you walk better you perform better you hold your instrument
00:26:16I like it. I show present Andre Kutu
00:26:37Better
00:26:54We grew together and
00:26:57we build and
00:26:59we walked and we fixed and we dreamed and we
00:27:05We traveled together and we grew together and we bonded together
00:27:11Because at the end all we wanted is
00:27:15To be the best of each and every one of us because we loved music
00:27:21We had respect for each other. We became a family and
00:27:26I became
00:27:30Who I am because of all these people
00:27:34I
00:27:52If you want to go fast you go alone and if you want to go far go together
00:28:05Oh
00:28:10Wow
00:28:11When I was this is upside down, but this is a drawing from
00:28:15RC
00:28:16he was drawing in my
00:28:19Dressing room and I was holding on and I'm still holding on to those beautiful souvenirs
00:28:34Oh
00:29:04I
00:29:34I
00:30:04You
00:30:28You should have a book who a larger on contrary that he put up on their phone
00:30:34You
00:30:37Because I've been in show business for 20 years and I'm giving myself I
00:30:43I gave my life, I didn't really live it
00:31:04Oh
00:31:11I said needs baseball check out my mom
00:31:34I
00:31:46When my kids were still very young babies I
00:31:54Was holding on to those moments so much
00:31:58Their first toys the first bib of RC that antique for the kids
00:32:10The toys and the souvenirs
00:32:16Every piece I remember and I know
00:32:23And
00:32:25And I
00:32:28Cherish they were important. They're still important and they will live on
00:32:43I must have liked one of these because there's four Wow. Well, it's a comma say tough. I'm not sure
00:32:56And now you're pressing for me, yeah, thank you
00:33:01What see ya, oh, thanks so much
00:33:05Did you see it?
00:33:08Yeah, what's little baby?
00:33:11Like I'm gonna buy you a diamond
00:33:14Okay, I don't know why I need to stand up to sing. Yeah, you can do it. Do you want to wear you?
00:33:19We don't have a wig. I wish I had a wig. Well, do you have a
00:33:21Have a sure I have
00:33:51Oh
00:34:21You
00:34:51You
00:35:16But I
00:35:21I
00:35:37Barrington is our popper who got COVID a couple days ago and
00:35:44We're just gonna send him a video to tell him like don't worry and stuff
00:35:51All the hair is super hard to draw in this so it's kind of no kidding because it's like yeah, it's super hard
00:35:56What are you doing?
00:35:58heart Oh
00:36:00Heart is my face. Oh
00:36:06Just one foot is just so cool. I
00:36:09Love that. Okay, make sure we see the flip-flop
00:36:13Okay, so stop peeling. I'm gonna make you vacuum. Don't be sorry. Don't do it. Just a little
00:36:20Do you remember the song don't worry about a thing cuz every little thing is gonna be all right, okay
00:36:28Go press and come back to the same position
00:36:33You ready here we go don't worry
00:36:38About a thing
00:36:43Cuz every little thing it's gonna be all right
00:36:48Cassie mr. Barrington. We love you so so much. We don't want you to worry about a thing
00:36:54Okay. Thanks, and we feel sorry that you had to rest but go through and I mean
00:37:01We don't feel sorry that you have to rest because we're happy that you rest but take your time. It goes faster
00:37:06We love you and miss you. Bye guys
00:37:36I
00:38:06Don't
00:38:22Stop a little song Barrington answered he did he said, oh, thank you so much missing you guys. Love you all
00:38:29You
00:38:49Selene are from a huge family. No, I just have 13 brothers and sisters
00:38:59Denise Lamar to death yet
00:39:03Michelle Louise Jacques Daniel Linda, just then Paul Puddin
00:39:09Did I say my no my no and sit in
00:39:1314 few
00:39:14We grew up in a little town called Charlemagne and that's in the province of Quebec
00:39:19cold
00:39:20Snowy the great ambience lots of music lots of gifts lots of love
00:39:27lots of happiness
00:39:30My
00:39:35Mom was a very strong person. She was a musician
00:39:42My mom met my dad through music
00:40:00My
00:40:11Parents left their dreams aside for us. My dad worked
00:40:16my mom
00:40:18Made it happen
00:40:20But sometimes there was nothing left in the fridge
00:40:25She never told us we have nothing to eat tonight
00:40:31She started to make dough
00:40:35And there was carrots
00:40:42She didn't say anything she puts her own beats and little
00:40:48Homemade ketchup on the table and all the condiment and everything
00:40:54that she could put on the table and a few beautiful hot pies and
00:41:01She said she prayed before
00:41:05She prayed that she was not going to hear mom. What is that?
00:41:14The first bite that someone took they said mmm mom, what is that? It's so good
00:41:25It was carrot pies
00:41:32You're the strongest of soul
00:41:37Mom is the superhero. You're my light in the dark. You're the place I call home
00:41:48We only felt love affection attention
00:41:51Attention music I have that in me
00:41:59This is my greatest foundation
00:42:07I
00:42:10Don't remember singing for myself so much
00:42:13I remember being five singing on the kitchen table and singing for my audience, which were my family
00:42:21I
00:42:23That's that was amazing there was like the lamp
00:42:29That could reach almost the light and the stars
00:42:34On top of the kitchen dining table and I was pretending that I was on stage and I was putting show
00:42:43on with my little
00:42:45Slip on whatever I had and I don't even know what I was wearing
00:42:52And
00:42:55Then my brother got married and I
00:42:59Was five years old and I sang a few songs and
00:43:05Told me that
00:43:08If there was a wrong note by the guitar player
00:43:11I would I would turn I
00:43:14Didn't know how to kind of like just go with it
00:43:17And my mom said when something someone does do something wrong, just don't don't go just don't do that. Make it like it
00:43:42Times like this will live forever
00:43:45For me for my family
00:43:51The person that I am today I didn't invent myself I didn't create myself I
00:43:59Am
00:44:01It's the performance that counts it's not the song a performance is way bigger than a song
00:44:11That was the beginning of me really I think
00:44:16Was that the beginning or was just that for me the blessing of?
00:44:22You know, I'm not sure I'm not sure I'm not sure I'm not sure
00:44:25I'm not sure I'm not sure I'm not sure I'm not sure
00:44:30Blessing of you can do that
00:44:55Can beauty come out
00:45:00Oh
00:45:08Celine
00:45:10That was amazing
00:45:13That was the most beautiful performance I've ever seen in my life. Thank you so much. Thank you. No, thank you
00:45:22We need to do it again
00:45:25Okay
00:45:26Why well, it's too good. Yeah, this is this is Deadpool 2 not Titanic
00:45:32All right, you're at like an 11. We need to get you down to a five five and a half tops
00:45:37Just phone it in listen
00:45:39This thing only goes to 11. So beat it spider-man
00:45:51The pink bottle
00:45:54Goes in the blue jar
00:45:56or the white box
00:46:05Hi
00:46:09You're such a good girl
00:46:15See good
00:46:18I'm telling you even my kids sometimes they were not that good one more time
00:46:23That's just it's very very important to feel better
00:46:28There you go, baby
00:46:31Here we go and mommy's gonna take care of the mess when I come back gotta go I
00:46:36Have to go see my son two minutes. I didn't see him
00:46:43Okay, I just want to see you before I leave okay, I have to leave today to do
00:46:48You know the movie that I did I have to do the French version of the English movie that I did
00:46:55So it's gonna be my first time
00:46:59Me oh my god. I
00:47:04Like that shirt on you
00:47:08You look cool
00:47:13Okay, I gotta go
00:47:15Hey chief, what's up?
00:47:19Good to see you likewise
00:47:24Can you pick him up
00:47:27Me whether I see you all song I'm city for was it a big Celine Dion
00:47:36Mira ray, hi, this is silly Dion sure and I'm Mariah Carey
00:47:46Don't give up on this call love comes to those who believe it and this is really me. Oh, yes, it is
00:47:55Don't give up on this call love comes to those who believe it. Hey, we hey, we okay. Hey, we
00:48:04Perfect
00:48:06Oh
00:48:10Love comes to those who believe it. We say very mom. Ah, she was your curse. It's right
00:48:17Peace, I won't leave it. I'm sure Cassie. Right. Say I can't show the food or curse. It's right. Wait
00:48:25Don't give up on this call love comes to those who believe it. Hey, we say very mom. Ah, ah, we say right
00:48:34Super sit a super
00:48:36Sit a super. Let's use a spy. Let's move on. That's a lynch. I'm DC. Take on top
00:48:42Okay, okay. Stay content. Just cut on top. Wait, and I'll we'll go to the next apart
00:48:50Miss Dion, it's been over a decade since you toured in the States. I'm curious. Why now for five years? It's been tough
00:48:58Raising my children after the loss of their father the love of my life my husband Renee, okay on a say on a say
00:49:05Oh a on a say
00:49:07They sang down here's a neon tea. Difficile. She pre-swim is on phone. I've read a set of their back the grand amour de ma vie
00:49:13mon mari René
00:49:18Hasta mañana
00:49:24When I was young
00:49:27Never needed anyone
00:49:33Making love was just fun. Those days
00:49:52Don't wanna be
00:49:57Oh
00:50:27You
00:50:57There
00:51:27Oh
00:51:57Oh
00:52:27Oh
00:52:48My husband offered this to me
00:52:52It was owned by Maria Callas
00:52:55She's
00:52:57Definitely one of the most amazing opera singer in the world. I hope she gives me
00:53:07Some strength, I think she will I think she will
00:53:25I need my instrument and my instrument
00:53:35Was not working so we started to elevate the medicine
00:53:40There's a longevity of a drug, you know, and when your adrenaline kicks in when you hear the crowd sailing sailing sailing
00:53:4920 minutes later it was gone from my dressing room getting backstage saying good luck to everybody the crowd insane
00:53:58My adrenaline my heartbeat my pride my joy
00:54:03I'm like the dream is about to come true again for me tonight. I love it so much
00:54:09But then I feel a spasm and my voice goes up
00:54:13The medicine was burned out. It was gone
00:54:32Celine
00:54:47That was 280 milligrams to 90 milligrams of Valium a day
00:54:54That's just one medicine
00:54:56I
00:55:01Don't want to sound dramatic but I could have died
00:55:27I
00:55:48Was taking those medicines because I needed to walk I need to be able to swallow I
00:55:54Needed medicine to function
00:55:56I
00:55:58One more pill two more pills five more pills too many pills
00:56:08Sure must go on
00:56:15When I had to cancel shows, you know, we have to tell the crowd why and people why
00:56:22I
00:56:30Can't lie
00:56:36From a sinus infection to a near infection to
00:56:42Whatever
00:56:46Sometimes I would point my microphone towards the audience and I would make them sing it
00:56:53I
00:56:56There's moments where I cheated and I tapped on the microphone like it was the microphone's fault I
00:57:07Did what my mom said I didn't flinch
00:57:14And there's also moments where we had to stop the show
00:57:18Quick change, and I never came back
00:57:31The lie is too heavy now
00:57:47I
00:58:17I
00:58:25Just want to
00:58:45I'm ready
00:58:48I
00:58:53Hello everyone
00:58:55I'm sorry. It's taken me so long to reach out to you. I
00:59:01Miss you all so much
00:59:04And I can't wait to be on stage talking to you in person
00:59:11As you know, I've always been an open book
00:59:15And I wasn't ready to say anything before
00:59:23But I'm ready now
00:59:26Recently
00:59:28Have been diagnosed with a very rare neurological disorder called the stiff person syndrome
00:59:36Which affects something like
00:59:39one in a million people
00:59:42I'm working hard with my sports medicine therapist
00:59:48every day
00:59:50To build back my strength and my ability to perform again
00:59:58But I have to admit
01:00:03It's been a struggle
01:00:05I
01:00:10Know is singing
01:00:15It's what I've done all my life
01:00:20And it's what I love to do the most I
01:00:25Miss it so much
01:00:28Being on the stage
01:00:30Performing for you. I always give a hundred percent when I do my shows
01:00:36But my condition is not allowing me to give you that right now
01:00:41For me to reach you again. I
01:00:45Have no choice
01:00:47But to concentrate on my health at this moment, and I have hope that I'm on the road to recovery
01:01:01Take care of yourself
01:01:05Be well
01:01:08I love you guys so much
01:01:12And I really hope I can see you again
01:01:31Um
01:01:35Do we do we have what we need
01:01:45Did you have any extra soreness or anything from what I worked on
01:01:49No in this area. No. All right, so that's the good part good good today. We're gonna work on the feet
01:01:56Okay, do you want me to cream them? Nope? I'm gonna cream them
01:02:00Yeah, I didn't don't worry. You didn't do your pedicure. I know
01:02:21Have you been using that cream not lately I see that
01:02:30Give me a break. Give me a break
01:02:41Ouch easy when you grab that heel, sorry, I
01:02:47Want to be good you are good
01:02:51Think about where you were two and a half months ago. Think about where you were in November. I
01:02:57Don't want to think about that
01:03:01I want that motion
01:03:04There you go better good better or good it's better
01:03:12What can I do to make it like so
01:03:16Move this foot slightly in right here
01:03:19Good, so it's around your hips working hard for me. It's not
01:03:23Not a part of a problem
01:03:31Oh
01:03:38For a moment in my life where I was like
01:03:42In control of what I love to do. I could record three songs
01:03:48for night
01:03:51I
01:03:55They would say to me like
01:03:57Your voice starting to change and I'm like, okay
01:04:00So since it's starting to change I want to use I want to sing this song now because this song
01:04:06Needs I need to hear
01:04:08the struggle or
01:04:11the disappointment
01:04:20I
01:04:33Even though I really want to work hard and do it and I
01:04:38Have to listen to not my body, but the people that I trust for my body
01:04:44You have to believe in the people that you work with and so far so good, you know
01:04:50Have you seen the friends episode with Phoebe?
01:04:53she does
01:04:56No, if she wants it she sings of the cafe and so when she's singing at the cafe, she's got a terrible
01:05:03And so she gets sick and she loves her voice and so she always wants to be sick
01:05:08Just because she likes the raspiness of you something. I
01:05:13Love her. I don't know her. Okay, and it's so cool. You know why because I always envy
01:05:19Yeah, people who smoke. Okay, and they drink and they party and they don't sleep. They're super cool
01:05:25Yeah, I mean cool people. Okay, and then they just like
01:05:33And they go
01:05:37And people
01:05:50I
01:05:50Want to be I want to be like them and I was like they go to the bar
01:05:56They just do whatever right time and they have a drink and me I I have water
01:06:01And I sleep 12 hours
01:06:20Look at this right there
01:06:30Percussion
01:06:39Yeah, I'm feeling down
01:06:41Oh
01:06:48The hoarseness in here so natural
01:07:12Oh
01:07:20The keyboard and
01:07:22It's so a sleeveless shirt. I mean at one point, you know, sometimes I wish I could just be rock and roll
01:07:30playing guitar guy
01:07:33Okay, sir, so something the first thing I didn't know there was like questions, okay
01:07:39So the first set of IDs we're doing is for a John Farnham documentary. Yes
01:07:46okay, so
01:07:48we don't have to ask the question, but if it helps you we'll ask the question and
01:07:52You're answering as if you're being interviewed by you know
01:07:56The host of that show. Yeah, because we're not going to ask you to answer the question
01:08:00The host of that show. Yeah, because they're obviously in Australia because for me when I read this
01:08:05How did you first hear about John and then my answer here on here?
01:08:10It says I first discovered well, first of all, I wish I would have discovered John Farnham
01:08:14I did not I did not discover John Farnham, but you know what I heard John Farnham
01:08:21And I was flipping because the power broke or radio and if you want we can change it
01:08:27We can say I first heard John but yeah, but you want to take want to change it
01:08:31I mean instead of 25 years ago if we can say two years ago, that'd be
01:08:36feel better
01:08:40Who's gonna give the cue
01:08:45Thank you so much in three I
01:08:51First heard John about 25 years ago when I heard the song you're the voice
01:08:58It was so powerful
01:09:01His voice was incredible
01:09:03so emotional
01:09:05I
01:09:24Went on to the birthday message for Paul's mother set the next one you have there a hundred years old
01:09:31Yeah, it's incredible
01:09:36I'll take your time. It goes faster
01:09:43Take one for Dorothy
01:09:45Hello, Dorothy
01:09:47It's still in here, and I'm delighted to join Paul and all of your family in wishing you a very
01:09:56happy
01:09:58100th birthday
01:10:00I
01:10:01Such an incredible milestone
01:10:04Wishing you health and happiness Dorothy
01:10:08Take good care. I
01:10:10Don't know you
01:10:12But I love you
01:10:15That's a great that's a great message I
01:10:19I
01:10:23Know it doesn't read on camera, but it makes me smile, and I'm ready here we go
01:10:33Yeah great you liked a little bit of a mm-hmm yeah, I do okay, if not I get other mm. No no
01:10:40That's what it's kind of yeah
01:10:48I
01:11:00Well finally around
01:11:042018 we were putting our set list together for the Asian Australian tour
01:11:11And I wanted to include you're the voice
01:11:14So bad where can I sing that song when can I sing that song ha ha
01:11:20You want me to be in Australia?
01:11:23You're gonna you you're gonna hear me sing that song, but never I thought that I was going to sing it with him
01:11:43You're
01:12:05When you come in a studio, and you record it sounds great
01:12:12But when you go on stage it will be greater
01:12:17There's no mistake on stage because there's
01:12:21humanity
01:12:23bonding
01:12:25emotions and
01:12:28You forget your words
01:12:30And you panic for a second
01:12:33And out of the room they start to sing I
01:12:38I think I have a great idea. I watch I want all of you right here tonight
01:12:42I want you to sing this last phrase of that song with me
01:12:48Okay, my son
01:13:04Oh my god
01:13:07I
01:13:37Hey
01:13:41Here we go Eddie you gotta watch mr.. Barrington Eddie mr.. Barrington watch Eddie
01:13:50Eddie what do you want to drink?
01:14:07Oh
01:14:37Oh
01:15:07I
01:15:12Haven't sang for two years. I'm not quite sure if I'm gonna be capable of singing
01:15:21But I can't live in doubt nice
01:15:25I
01:15:36Emotionally it's very difficult I
01:15:39will in
01:15:40The next few minutes find strength, and if it cracks, and it doesn't work. There's nothing I can do
01:15:48and if it works I
01:15:51will be
01:15:54I'll be happiest I will be everybody's gonna be happy, but
01:16:00it
01:16:02If I may say I don't I will sound selfish, but it's all about me. I will be extremely happy
01:16:09Because it will be a step it will be that I
01:16:13make in a step
01:16:15Right
01:16:22Rising tides tears you cry every night see never
01:16:33But that's just like the last goodbye high and dry leaves you there
01:16:40I
01:16:46Brought your voice up a bit too. Sorry. It'll take a while to adjust and then no problem
01:17:00Rising tides tears you cry every night see never
01:17:11But that's just like the last goodbye high and dry leaves you
01:17:22You might think your world is ending, but it won't
01:17:28You might think you need to give up, but you won't
01:17:33Cuz you don't have to move
01:17:36And just get moving
01:17:39Okay, I love love I'm gonna have to switch to head voice because I
01:17:45Don't think it's gonna work. You're doing great sling. Yes. We haven't heard this for a couple of years
01:17:51It feels like music to us
01:18:00They paid a lot of money around the world to come and see our shows I
01:18:04I
01:18:06Feel like
01:18:09Let's say
01:18:12There's an apple tree, I'm an apple tree
01:18:18And people are in line and I give them apples the best and I shine them
01:18:24And they all leave with a basket of apples
01:18:34And
01:18:36My branches are starting to fall sometimes
01:18:39Get crooked
01:18:41And those branches are starting to produce a little less apples
01:18:46But there's still as many people in line
01:19:03I don't want them to wait in line if I don't have apples for them. Can I do it again, please?
01:19:28Rising tight
01:19:34I want to sing with joy. I want to sing without thinking I want to sing without
01:19:43Speed bump in my way, you know
01:19:56Maybe I can sing another kind of repertoire
01:20:03But then it's gonna be their choice to
01:20:07Still like me
01:20:33Do it
01:21:04So
01:21:06Is that yes today so that's gonna be yes today
01:21:23Did you cry every night see me
01:21:27And
01:21:32That's just like the last goodbye high and dry leaves you
01:21:43You might think a world is ending but it won't
01:21:49You might think need to give up but you don't
01:21:57Just keep moving
01:22:00Every move is a new emotion
01:22:06If you don't have to fight the odds, you just keep trying
01:22:11The sun will rise again
01:22:14It's time
01:22:27I'm plugging myself
01:22:50Rising touch is you cry every night?
01:22:57And
01:23:04Let's try again same way
01:23:15Rising
01:23:18I'm trying to make it louder and I can't you know, like I'm trying to make it louder
01:23:24The rising tide, you know, I'm trying to and I can't so
01:23:43Cuz you don't have to move I'm out and just keep moving
01:23:49Every move is
01:23:51New emotion
01:23:54And you don't have to find the answer just keep trying
01:24:00The Sun will rise again
01:24:02The storm subside again
01:24:05This is not the end
01:24:09And you
01:24:12You
01:24:21Oh
01:24:29Beautiful
01:24:33Mercy city
01:24:35And you don't have to find the answer just keep trying
01:24:41The Sun will rise again
01:24:44The storm subside again
01:24:47This is not the end
01:24:50And you
01:24:58Summer rain
01:25:11So you forget me
01:25:14Oh, we're gonna go in there, let's get you lie down on your back. Oops saddened
01:25:26Silent yeah
01:25:28That's
01:25:38She didn't evidence thousands yesterday, that's
01:25:41Well your ankles
01:25:44This is your first thousand for today, or did you have any others to know?
01:25:48Yeah
01:25:50Part of the disease is that as soon as you go into a contraction
01:25:54Sometimes it doesn't the signal to release it doesn't understand it. So it ends up just staying into a contracting position
01:26:04So just try to relax
01:26:07So right now this gives us an indication that her body her brain right now is over stimulated
01:26:13And there's something going on and she keeps spasming that could lead to a crisis
01:26:24You
01:26:34What I'm gonna do is we're gonna give you some of that valium, yeah, so she's going into the seizure
01:26:54Okay
01:27:01Okay, so lift your head for me if you can lift your head get on the lift
01:27:19Brian I need you right now. She's in a crisis
01:27:24Just
01:27:27Give me the meds, please
01:27:36Good just leave that there grab that this towel so we can support her head
01:27:55I'm gonna lift her body. Yeah, if you don't mind grabbing this bottom arm
01:28:01Just up on there. Ready? I'm gonna lift her. Yeah, right one, two, three
01:28:05She might be in spasm. Yeah
01:28:10Got her. Yep. There we go. There we go boss. Good
01:28:16So then you're okay you're okay so
01:28:21Good good
01:28:25It was
01:28:30So then
01:28:33Put your fingers in her hand just in her hand
01:28:36Squeeze bright Brian's hand if you can't let a girl good job. Good. So she's still with us. Give me another squeeze boss
01:28:44Thank you
01:28:47We're still with you bullshit good
01:28:54Her foot started spasming
01:29:02She's putting that blood pressure cuff on you boss
01:29:16We're gonna go a couple more minutes, okay, if nothing changes we're gonna give you the nasal spray
01:29:24Okay, so then try to come down
01:29:37It's okay, so everything's okay. So then you've got all your team here. We're all all with you. Everything's gonna be okay
01:29:46Everything's gonna be okay
01:29:54Okay
01:30:17Nasal sprays going in at 728
01:30:24Oh
01:30:55We got you boss
01:31:02We're with you everything's okay
01:31:12Let's try to slowly breathing and just concentrate on your breathing right now, okay
01:31:25Good
01:31:28Hands are starting to loosen up. Okay, so then we're gonna go another nasal. Okay. Okay, so you're with us
01:31:46Ready
01:31:48One two three slowly coming out
01:31:52That's the second one 740
01:31:58So then squeeze my hand squeeze my fingers for me good excellent good
01:32:06So we had 10 minutes
01:32:09It's 10 minutes if she doesn't
01:32:12What did she say yeah, we've given the second one
01:32:17Yep, we just gave it just now at 740
01:32:22It's sounding like she's coming out and if she goes back to the spasm, then we'll do a 9-1-1
01:32:31Good slim welcome back. Everything's good
01:32:40It's okay, it's okay. All right. All right, you're good
01:32:52Do you want us to take the cameras out right now, are you okay?
01:33:02Okay
01:33:21I
01:33:24Returned something like this happens and it makes you feel so embarrassed
01:33:29so like I
01:33:32Don't know how to express it like it's just
01:33:38You don't like to not have control of yourself
01:33:52You
01:34:04Your nervous system now has gone through a battery round of everything and your whole body just went through a whole lot
01:34:12So we're just gonna let you say it's because I I had a good time
01:34:16Mm-hmm
01:34:17Your brain was just overstimulated. Yeah
01:34:20So there's a so these crazy. Come on you. Well, that's it's just what I was getting finding the way
01:34:31Because what's gonna happen it's like if if I can't get stimulated by what I love and then I'm gonna go on stage and
01:34:38Like you're gonna put the pulse examiner on me and you're gonna turn me on my back
01:34:43It's scary. I know
01:34:46It's hard
01:34:47Your journey is not this is not the end of your journey. We all know that but there's always that step on my journey
01:34:58You want another song our ending song our ending song. Yeah, I got it
01:35:06The last song of the night
01:35:10Just because
01:35:12You are
01:35:42I
01:36:12Oh
01:36:42Oh
01:37:12Oh
01:37:25What a song what a song
01:37:42I
01:37:53Still see myself dance and sing
01:37:59And I always find plan B and C, you know, that's me
01:38:04If I can't run I'll walk if I can't walk I'll crawl
01:38:13But I won't stop
01:38:19I won't stop
01:38:34Oh
01:38:44Well, that's just like that's last goodbye I am try and leave you
01:38:55You might think the world is ending but it won't you might think you need to keep up what you don't
01:39:02Cuz you don't have to
01:39:32Oh
01:40:02Oh
01:40:32Oh
01:41:02Oh
01:41:32You
01:42:02You
01:42:32You