TikTok star's videos on autoimmune disorder reach millions - see our special feature on www.shotstv.com - video Dailymotion

Sunderland Echo

TikTok and Instagram star Evie Meg - thistrippyhippie - has built an audience of millions bringing attention to her autoimmune disorder PANS/PANDAS and talking about her Tourette's Syndrome diagnosis - while still taking the time to have some fun. See the full story at www.shotstv.com

Transcript

00:00 I remember the first time I saw someone else having a seizure.

00:02 It was really shocking and it was like,

00:04 oh my goodness, is this what it's like

00:06 for the people who see me have one?

00:08 - We're here at the home of Evie Meg,

00:11 one of Britain's most influential social media stars.

00:14 - There is the occasional, why would you post this?

00:17 Usually just people not understanding

00:19 why it would be posted, which I do understand

00:21 because it is very vulnerable

00:22 and it's not very nice to watch.

00:24 But if you saw someone in the street having a seizure,

00:27 I want people to be able to recognize it

00:29 and think I know what it is.

00:31 - Where do you stand now in terms of numbers of followers?

00:34 - 16 million.

00:35 Like you can't really imagine that amount of people.

00:38 I've met a lot of the people with the same condition,

00:42 autoimmune basal ganglia encephalitis.

00:44 I just try and get the name out there

00:46 and make people aware of what it can do

00:48 and what it can look like.

00:49 But then also trying to keep things

00:52 a little bit lighthearted as well.

00:54 (gentle music)

00:56 [BLANK_AUDIO]

TikTok star's videos on autoimmune disorder reach millions - see our special feature on www.shotstv.com

Category

Transcript

Recommended