Nine-year-old boy shares touching message about medical condition

A touching video has emerged from the United States of a young boy sharing a hopeful message about living with Schwartz-Jampel Syndrome (SJS).

In the clip, which was filmed in Pennsylvania, nine-year-old Giovanni holds up signs explaining that there is more to him than his rare condition.

"I like cats and dogs," one of the signs reads. "I want to be a vet one day," he writes on another.

And then little Giovanni signs off saying "I am Giovanni, not SJS" and blows a triumphant kiss for the camera.